February 28, 2013:
Time has sure gotten away from me the past few days. Thankfully all my tests and MD appointments have turned out well and I'm going to be fine with just the daily 325mg Aspirin. I should probably stay away from doing extreme sports like sky diving for the time being as well. Anyways, Robert and I decided to head to the mountains of West Virginia Sabbath afternoon for our preplanned ski trip w/ a group of friends from college/med school. Things were stable with RJ and we really haven't been out of the hospital since beginning of January, so it was a much needed break. I have to admit it was hard for me to fully relax and enjoy myself. My world has changed so much in the past few months and it's hard for me to try and mesh my pre delivery and post delivery worlds together. It's hard for me to be compelety happy when my lil boy is sick and my hands are tied to fix him. Being patient was something I felt pretty good at until this NICU experience happened. There is so much waiting and I just want to speed things up. I want quicker progress and when those bumps happen so slow progress, such as reintubation, it seems like we are taking a GIANT leap backwards. I know people tell me they are amazed at how strong Robert and I are. Honestly we don't feel strong all the time. We are just trying to take one day at a time. It's a tricky thing to juggle home life, work life, and hospital life. I can't believe that tomorrow is already my 6 wk post-op appt. Time sure is slowly flying by. :)
We are finally starting to see RJ perk up again. He was quite fiesty this afternoon when we did his noon cares. He and I had a real good Kangaroo time and then he started squirming and told us he was ready to get back into his isolette. Once back he was stretching and moving his lil arms like crazy. They were getting a hold of his mouth tubes, so Robert had to hold his arms still while I changed his diaper. We don't want the lil guy extubating himself! They have been increasing his feeds the past couple days, so he's at 10mls an hr. I really need to step up the pumping so he has enough milk. :) His Hct is down to 25.7, so starting tomorrow they are going to split a dose of blood over 2 days. They have been leary of giving him blood too quick b/c it knocks out his body's drive to produce it's own red blood cells. They have been weaning his rate on the ventillator. He has been taking more breathes on his own which is fantastic. They started him on steroids this week to help beef up his lungs. His Attending this wk said this will help with extubation. They are wanting him to be successful this time and the steroids help decrease the inflammation in the lungs. He's still having a log of secretions in his mouth and nose. I think he just wants his breathing tube out. :) At 3 am tomorrow he will of had the breathing tube for a whole wk. I'm hoping they can get it out sometime this coming wk. The rest of his body has been functioning properly, so we are very greatful for that. Like I said before his weight fluctuates depending on the poopy diapers, but he's hovering around the 3lb mark. I'm hoping the increase in his feeds will bump him up to double his birth weight!!
I hope you enjoy the new pics I'm going to put up. He was silly today and looked like he was going to jump right out of his bed. The nurses said he arched himself back multiple times even after they snuggled him back into the right position. He has a mind of his own. I think I'm going to have my hands full. :)
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