March 23, 2013:

I know I haven't been in the mood to blog lately. I've been tired too. By the end of the week I'm exhausted. I'm happy to report that RJ is doing well. They have been able to wean his Fio2 down to between 23-26%. He gets agitated w/ his cares and then usually settles right back down. He has amazing head control, so will turn his head from side to side whenever he wants. It's pretty funny. :) I got to hold him Thursday evening after his night cares and calmed him right down. I could have just fallen asleep there w/ him on my chest. :) We went in Friday morning and I ended up getting to hold RJ for 3.5 hrs. The nurse went to take him back to his isolette and saw how comfortable he was and just couldn't do it. :) I didn't mind putting off needing to pump or go to the bathroom to hold my boy just a lil longer. :) They haven't made much changes over the past couple days. They want RJ to get used to the NIPPV and give him every chance to "fly" this time. They held off on giving his eye exam this week, so he will have it on Monday. It's a pretty big stressor for the lil preemies. They've adjusted some of his meds per his weight, which decreased after his large amounts of poo the other night and not having all the extra tubing from being intubated. He's around 3lb 13oz. They are going to be more cautious with weaning his NIPPV settings. He gets cap gas readings twice a week to make sure his respiratory status is still doing well, plus he gets chest x-rays on those same days. I'm starting to get a lil more excited that he's extubated. I'm just tired of all the set backs, so it's hard to get really excited about this step. He is looking more and more adorable each day. I wish I could just hold him all the time and never let go. :)
Thanks for all your prayers and support!!