March 18, 2013:
Bath time went well Saturday night. I was lucky to be able to hold RJ after his bath with his clothes on like a real baby in the crook of my arm. It was special to look at him and his wide eyes as I was holding him. He lasted for about 30 min in that position on his back before we put him up. He was getting dingy with his sats. Yesterday we had some good snuggle time on his 2 Month Birthday!!! I held him like a big boy on my chest with his clothes on. He was all sprawled out. It was adorable. They weaned some of his ventilator settings and went up on his feeding rate due to his increased weight. He's at 3lb 15 oz and 16inches!! His FiO2 got down into the 20's yesterday!!! He's making much progress this week and it's exciting. We just finished rounds this morning and they are going to adjust his diuretics based on his weight. Yesterday they went up on his feeds to 34ml over 30 min every 3 hrs. They made an extubation plan today. Since he got his 2 month shots this morning, they are going to wait till tomorrow morning to start another run of steroids. They will have him get 3 doses before extubating sometime on Wednesday!!! It will be a 6 day course of steroids again this time. They are hoping that extuabting in the middle of the course will give him a higher chance of staying off the ventilator. They decided to tweak some of his ventilator settings this morning as well in preparation. We want him to get used to being on lower settings before switching back to NIPPV again. We are optimistic this time that he will do well. He's gained a lot of weight and hopefully that means new lung tissue. He's resting peacefully right now on his belly. The plan is for me to hold him after his noon cares today.
On another exciting note, we set up RJ's crib and changing table yesterday and rearranged his room. Now we need to purchase the crib bedding and get some baskets and essentials for the changing table. We have some wall decorations that need to be put together and hung. It's starting to really take some shape now!!
Thanks again for all your prayers and support!!!
Shellie and Robert, we continue to read the updates and keep praying for little RJ. So exciting that his room is taking shape:) Good job RJ on the weight gain. WE LOVE YOU LITTLE GUY! UK and AJ
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